Boy do I have a lot to blog about - but I can't right now. Because of everything going on with me, I just wanted to post quickly to let you all know I'm okay. I had a very rough day yesterday. We had an HPS board call last night, and then I went to bed. I was up several times in the night feeling sick with acid reflux etc. Today is deadline day and I'm at home - I just couldn't do another day with my heart rate and blood pressure bouncing all over the place. Anyway - I did make some headway yesterday - I'm okay today, just very tired - and I'll post more when I can.
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
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