There is a LOT going on for HPS in Puerto Rico these days. Donna and Ashley decided to take advantage of the momentum and attended the meeting of the Pulmonary Society of Puerto Rico. It was a great event to network and to set up relationships for some things coming our way - hopefully! I can't get into them just yet as the planning is too early on and the funding isn't all settled - but it's exciting stuff. Stay tuned! https://www.hpsnetwork.org/en/news/2015-12-02/hps-network-attends-pulmonary-society-of-puerto-ricos-annual-meeting
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life