We have added two new HPSers to the registry. This puts us at 88 to go on the Hundred People Search (HPS). Both of our newest members are from outside the United States. It is so important to find our fellow HPSers overseas, as well as in the U.S. We don't want to leave anyone behind. And, who is to say the cure will be found here? There are brilliant scientists all over the world. The HPS Network currently has a program to reach out to scientists from around the world interested in HPS research. Often they want to know if we have HPSers from their given countries in our database. We are a rare disease. We can't afford to have our efforts separated by borders.
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life