Living on the frontlines

This is the back side of my building. My apartment (from the back) is on the second floor. Here it is covered by the trees.  Our street  Fin's Flexi-leash field Park near our house Front of our apartment building - we are the first floor (from the front) on the right. We love the shade!  In order to keep all of you that are helping me in this journey, or helping support the HPS community in general, I’m trying an experiment with blogging. I’m going to try to write several blog posts when I am able to blog, and then schedule the posts to stagger over a few days. Just FYI, lest you think I suddenly have more time to blog! Grin! One of the things I’ve been eager to blog about, is my new neighborhood. I do miss my old neighborhood a lot. I miss the people and Homers. There just isn’t a comparable place here. Here, when you do find a little coffee shop, they don’t exactly go out of their way to make it a great place to stay a while and work. This is understan

We've added another HPSer to the registry. I was just cleaning out e-mails and found one I had missed from the office! This puts us at 80 to go on the hundred people search! 

Today we added a new member to the patient registry. This puts us at 81 to go on this year's hundred people search. 

We added a new HPSer to the HPS patient registry. This puts us at 82 to go on the Hundred People Search. 

It has been too long since I updated the blog. I have so much to share with everyone, especially friends back in Kansas! It is just harder now to do the updates. I get tired easier. I have a lot going on medically. And, I am trying to keep up my work with the HPS Network. By the time I am at that point of the day when I can blog, I am pretty tired out. I will try to do better – but that’s all I can promise. So, first, I wanted to post a medical update as it is just so much easier to explain all of this once than over and over again – grin! There has been a lot happening. I have a new primary care physician and a new pulmonologist. I’m excited that the pulmonologist seems very interested in learning about HPS and very open to seeing our relationship as a partnership. I’ve only had one appointment with the primary care doc, so I just don’t know her as well yet. I do know I very much miss my doctors back at the University of Kansas. They were awesome. They were so giving of their time and

Today we added a new HPSer to the patient registry - this puts us at 83 to go on the Hundred People Search (H.P.S.) 

This past week we have added three new HPSers to the HPS patient registry. This puts us at 84 to go on the Hundred People Search so far this year. Also a side note to blog readers (who have probably all given up on me) - I am so sorry I haven't posted more since the move. It has been SO BUSY!!!!! I do have so much to update, but just trying to keep up with the basics is a lot right now.