Living on the frontlines

A question I always get from members is, how can I volunteer to help the HPS Network? One way anyone with an internet connection can help is to be an online advocate.  Today’s world is an online world. Getting noticed isn’t as much about the actual number of people affected by HPS as much as it is about how engaged those of us with HPS are online and on social media. We can exercise as much muscle as some of the “big charities” if we are better at mobilizing our population. You’d be surprised how some of the little things you can do every day will help the HPS Network. Here’s a list of ways you can help online: 1. Share the HPS Network Website, www.hpsnetwork.org. Search engines crawl the internet and rank Websites based on a number of factors. One of the factors is how many other places and Websites offer a link to the HPS Network site. If you have a blog, please mention the HPS Network Website whenever you can. List it on your blogroll. If you’re posting to twitter or facebook, p

I know HPSers like me are often looking for ways to earn a little extra money. For many of us, freelancing might not make us rich, but it fits our medical lives better. I had never thought of this as a possible income opportunity. If I lived in New York, I'd go. Generally, those of us with HPS are legally blind, but most of us see well enough to see the action on TV or the movies if the screen is large enough.  Audio Description Training in the Big Apple! Audio Description Associates, LLC and the American Foundation for the Blind announce AUDIO DESCRIPTION TRAINING February 26-28, 2014 In Conjunction with AFB's 2014 Leadership Institute at the New York Marriott at the Brooklyn Bridge - Brooklyn, NY Audio Description (AD) makes visual images accessible for people who are blind or have low vision.  Using words that are succinct, vivid, and imaginative, media describers convey the visual image from television and film that is not fully accessible to a signific

We've added one new person to the HPS registry. This puts us at 39 to go on the Hundred People Search! Woohoo! 

We have added two new members to the HPS patient registry. This puts us at 40 to go on this year's Hundred People Search H.P.S. Way to outreach everyone!!!!