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Showing posts from January, 2017

A press release of interest to those who work for the federal government

Today this press release was in my inbox. I'm posting it because I have so many blind friends that work for the federal government. This may or may not impact you - I don't work for the government, so it is governmentese to me - but here it is: 


Chris Danielsen
Director of Public Relations
National Federation of the Blind
(410) 659-9314, extension 2330
(410) 262-1281 (Cell)

National Federation of the Blind Applauds Issuance of "508 Refresh" Regulations

Baltimore, Maryland (January 9, 2017): The National Federation of the Blind, the nation's leading advocate for blind Americans to gain equal access to information and technology, today applauded the publication of new technical standards to bring information and communication technology (ICT)  into compliance with section 508 of the Rehabilitation act of 1973, which requires government agencies and contractors to make their electronic information and technology accessible to …

Listed for lung transplant

My transplant hospital - Inova Fairfax
So, this post is a month in the making! After getting rid of half of my belongings, relocating to Arlington, VA, lots and lots of fundraising by treasured friends and supporters, and a year of tests, more tests, some tests, dieting, more dieting, a hospitalization and a big dental saga – I am FINALLY listed for a double lung transplant.
Some of the people I know who are going through the same process get kind of blue when they are listed. It is the last resort thing to do, and it’s super scary. For me, however, I felt like having a party! I celebrated with friends from Kansas that were visiting and I ate a hamburger. I was craving a totally unhealthy kind of hamburger and fries. I don’t think lung transplant is easy for anyone, and there are certainly other people (some in my pulmonary rehab group) who have issues just as rare – but I was never able to assume I’d get listed, even if I did everything right.
The anxiety I’ve lived with for the past …