Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Friday, August 07, 2015
Hundred People Search Update
This past week we have added three new HPSers to the HPS patient registry. This puts us at 84 to go on the Hundred People Search so far this year. Also a side note to blog readers (who have probably all given up on me) - I am so sorry I haven't posted more since the move. It has been SO BUSY!!!!! I do have so much to update, but just trying to keep up with the basics is a lot right now.