Boy do I have a lot to blog about - but I can't right now. Because of everything going on with me, I just wanted to post quickly to let you all know I'm okay. I had a very rough day yesterday. We had an HPS board call last night, and then I went to bed. I was up several times in the night feeling sick with acid reflux etc. Today is deadline day and I'm at home - I just couldn't do another day with my heart rate and blood pressure bouncing all over the place. Anyway - I did make some headway yesterday - I'm okay today, just very tired - and I'll post more when I can.
I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.
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