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The blog is back, I hope

 

What started as a way to share news about HPS and what it is like to live with Hermansky-Pudlak Syndrome has fallen apart badly! There are a lot of reasons for this. Some are related to health. Some are related to time. And some are related to mental health. Finally, the last obstacle was technical. I lost access to my blog. Every time I started to work on regaining access, something interrupted the process and I’d have to start all over again.

Before you say it, I know. A blog is so old school. Haven’t you heard of a vlog Heather? Or maybe TikTok? I know my limits. I have a great face for radio. I’m not particularly eager to film myself. When I do, I feel I need to spend extra time putting on makeup or fixing my hair. Yet, often when I have the time to do something like this, it is early in the morning or late at night. I don’t want to “get ready.” I’m having a hard enough time squeezing this in without staging myself. Grin.

I’m trying to start with small goals. Right now, I’m hoping to write a lot, but the goal is once a week. If I can do more, great. If not, I’m going to try not to beat myself up about it.

Some content will be serious. Some will be very much stream of thought. Some will be just stupid things that float into my brain. I’m not out to build a huge audience. I’m out to create a record.

So, let the blogging begin again…..trying very hard not to add a qualifier like, I hope.

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