Living on the frontlines

I haven’t posted an update in a bit. It’s been super busy and honestly, I just have days where I can barely keep my head above water and do what absolutely must get done that day. All and all I am doing well. I started a new medication and am hopeful it will help with some of this. It does take a bit for your body to adjust to it though. Some people have no issues, while others get side-effect symptoms. I’ve had some of those issues, but really can’t say for sure if they are related to the medication. For example, I’ve had stomach upset and some nausea, but then again with my gastrointestinal issues, I go through times when I have that already. It’s hard to say if it is related or just bad timing. Either way, it doesn’t matter. It isn’t so bad that I can’t cope with it. The biggest issue isn’t even so much the stomach upset as it is the getting up every 40 minutes or so all night to go to the bathroom. A few nights of that really wears a person out! Grin! Today I’m having some mild tum...

I heard the news I was waiting for and now I can begin to target a move schedule! Yippee!!! I still have to sit down with my team and look at the calendar and make sure we are all on the same page, but I think it is looking like I’ll be free to leave the Kansas City area in February. The catch is this is a horrible time of year to try to find a low-rent, ground floor or elevator, and hopefully dog friendly apartment. That’s a really tall order even during the best time of the year for the apartment market. So, we will see where we are at in February. If things are unchanged, then we don’t have to rush. If things start to change quickly again, then the plan is scrapped and we do whatever we have to do. If things seem to continue to change, but at a slow rate, then perhaps some of the wish list for the apartment will have to go to the wayside just to get myself there. I am a planner. I don’t like having things up in the air. These last few months have been so, so, so stressful!!! Not jus...

This is just a short update. I know that everyone in my life, and all of the generous people who have helped to raise money for my lung transplant, are wondering – what is the plan? So, the update is there is no new news yet. I am waiting on some answers that could greatly impact the move schedule. I thought we would have heard back by now, but it is taking longer than expected. This journey is such a roller coaster. I get anxious about all that is on my mind and not being able to answer everyone’s questions about when I will move. You’d think after years of living with HPS and waiting on test results that could dramatically alter your life over and over again, I’d be good at this waiting thing. I’m not so good. I think I’m doing a bit better, but it’s more exhaustion over being anxious than true master coping skills – grin!!!! So, for now, we just wait.