Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Friday, November 08, 2013
Hundred People Search Update
We've added a new member to the patient registry. This puts us at 45 to go on this year's Hundred People Search. Everyone keep up the great outreach work. This member came to us from the online outreach efforts of another member. Way to go!