Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Tuesday, August 27, 2013
Hundred People Search update
We've added a new HPSer to the patient registry. This puts us at 76 to go on this year's Hundred People Search. We have several others in the pipeline now so there will be more updates soon. Also, we haven't gone through the data from Puerto Rico yet. Keep up the great outreach!