Friday, May 03, 2013

Whitehead Institute and HPS Network Celebrate Rare Disease Day

The Hermansky-Pudlak Syndrome Network (HPS Network) was one of four rare disease patient advocacy groups to partner with the Whitehead Institute for its celebration of Rare Disease Day on Feb. 28th, the International Rare Disease Day Forum. 

Carmen Camacho and Frankie Feliciano attended the event and held a screening of the documentary RARE. 

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