Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Wednesday, July 18, 2012
RARE to air in Cleveland
The documentary RARE, following the HPS Network through a phase III drug trial to treat the pulmonary fibrosis of HPS, will air in Cleveland on Aug. 12 at 3:00 pm on PBS station WVIZ.
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