Thursday, May 10, 2012

RARE to be screened in Seattle!

The documentary RARE will be screened at the Seattle Science Festival on June 4th! We'd really love it if anyone would turn out for the event and the discussion afterwards. It doesn't matter if you have Hermansky-Pudlak Syndrome! Grin! Here's a link for more info: http://seattlesciencefestival.org/icalrepeat.detail/2012/06/04/996/rare-a-mother-s-quest-to-find-a-treatment-for-her-daughter-s-rare-genetic-disease

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