Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Tuesday, May 29, 2012
Breathing Better meeting at ATS
On Saturday, the ATS holds an afternoon event for patients with lung disease. This year Demetria and her husband Russel were able to join us too! It was so cool to have more HPS patients there. Next year ATS is in Phillly, so we should have a good turnout!