Monday, April 16, 2012

American Thoracic Society and Rare Lung Disease Awareness Week

The American Thoracic Society, as part of their Rare Lung Disease Awareness Week, is holding a Webinar on HPS on April 24th. It's free and the presenter will be Dr. Gochuico, our pulmo at the NIH. This is a great opportunity to learn more about the genetics of HPS, as well as the lung disease of HPS. It's also EXTREMELY helpful for HPS awareness to have a good patient turn out for the Webinar. And, if you haven't been able to make it to conference, or you want your docs to better understand HPS - it's also a great resource. 

You MUST pre-register for the Webinar. If you don't want to listen to the audio over your computer, you can do it on the phone as well. 

The link to register is: 

You will get a confirmation e-mail. You MUST save this e-mail as the link for you to log on that day is unique to you. Don't share it with others or it won't work correctly. 

Hope to "hear" you on the Webinar!!!! 

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