Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Friday, January 21, 2011
Hundred People Search Update
This week we added one new HPS person to the HPS patient registry. This puts us at 51 to go on the Hundred People Search. We are behind where we have been in previous years. I only wish that was likely because HPS'ers simply aren't out there. I think we know better.