Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Friday, January 07, 2011
Hundred People Search update
This week we added two new HPS'ers to the patient registry. That puts us at 55 more to go to meet the Hundred People Search challenge. We're tracking behind this year compared to where we were previous years. I'd like to think that's because there aren't HPSers out there in need of a diagnosis. But, I know better.