This information was in the recent e-newsletter from NORD - the National Organization for Rare Disorders. They are joining with others to create a Congressional caucus to promte the issues of those of us affected by rare or neglected diseases. Here's the info for readers who want to know more.
Rare and Neglected Diseases Congressional Caucus
Ask Your Representative to Join Congressional Caucus
With its advocacy partners, NORD has helped establish a Rare and Neglected Diseases Congressional Caucus. When the 112th Congress convenes on January 3, we will begin actively promoting membership in the Caucus. Please help us launch this potentially very important forum by asking your member of the House of Representatives to join the Caucus if he or she has not already done so. View list of members.
Joseph Crowley (Co-chair)
Fred Upton (Co-chair)