Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Thursday, April 29, 2010
Just me and the girls
Tommy Tillman took this pic and I really like it. Not only is it a pic of me with some of my best friends in all the world, but it's also a nice pic to show how different the phenotype of HPS can be. Everyone here has HPS - not just the blondes.