Skip to main content

Help the HPS Network win some money - it's a race - timing is everything

I'm copying this information from www.igive.com. Anyone who could pass this along and help us we'd greatly appreciate it.

Hi Heather,
Last month, we tried something new to help Hermansky-Pudlak Syndrome Network and all the causes listed at iGive. It worked better thanwe ever expected. We donated over $5,000 in less than 24 hours, so we're going to try it again!It requires your participation, but it is free and definitely easy.For each person who joins iGive using the special link below and does just one qualified web search on our site between now and noon Thursday, we'll give Hermansky-Pudlak Syndrome Network a dollar. 5,000 new members, $5,000. No purchase necessary. That's 5,000 new members for all causes, not just yours, so it's a bit of race.Of course, if these new members search more (or buy something at an iGive store) they'll earn even more money for Hermansky-Pudlak Syndrome Network. Right now, we're donating a special $.02 per search and a bonus $5 for that first purchase plus the usual percentage.Here's where you come in. The only way Hermansky-Pudlak Syndrome Network will get new supporters and that free $1 (or more) is if you invite them.

Send your friends, family, and colleagues the following link in an e-mail, tweet it, do a Facebook posting, put up posters, shout from mountain tops (you know the drill) and let them know you think Hermansky-Pudlak Syndrome Network is pretty cool and deserves their support, especially since it's free! You can even just forward this e-mail.This is the link: http://www.igive.com/welcome/warm_reg_promo.cfm?m=427355 We're really proud of our search capability, powered by Yahoo! We've made tons of improvements over the past five months, so we want lots of people to try it out and put it to the test. If they keep on searching or shopping after testing us out, so much the better for Hermansky-Pudlak Syndrome Network.The details: - Offer active between now and 11:59 a.m., January 21, 2010 (Chicago time). - New members only (never have been an iGive member previously). All the normal rules of membership, searching, and purchasing apply, our site has the details. - Once we've given away $5,000 in total, the offer ends. - The special link is important. No link, no qualified web search, no $1.That's it. Don't forget to try our search yourself (http://isearch.igive.com). You may need to login first.Yours,Robert N. GrosshandlerFounderP.S. We've added a little something new. If you want to track how you are doing, just visit http://www.iGive.com/html/referralsreport.cfm. If you want to track how your cause is doing, please visit http://www.iGive.com//html/causestats.cfm .

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for...

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria...

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.