Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
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The Steam Bath
I know this photo looks hazy, but it just shows how HOT it was the day we were at Disney. A rain storm came through, and after it left there was literally steam coming up off the pavement making everything hazy - and making my breathing oh so much fun! It didn't last too long though.
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