Tuesday, August 18, 2009

Act of outreach - Cleveland

We HPS'ers want to send a big thanks to the organizers of the Cleveland August get together - see below. Brochures are on the way to Cleveland to be shared with attendees. We very much appreciate the help of all of those with albinism - HPS'ers or not - to get the word out about HPS and the importance of getting diagnosed. We can't do it on our own. Everyone's help means a lot to us.

Here's the info on the Cleveland event, just in case you missed it.

WHEN: Friday August 21st from 6:00-8:30pm
WHERE: Cleveland Sight Centerwww.clevelandsightcenter.org1909 E 101st St, Cleveland, OH 44106(216) 791-8118Accessible via the RTA
WHAT: Socializing, information and fun!
Presentation by Angelique Stubblefield, PhD, MPH, BSN, RN onthe social and emotional aspects of albinism
Come meet others from the albinism community
Refreshments will be served
RSVP: Call Venetta at 216.375.9351

No comments: