Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Here's another pic from Frankie - these are some of our team from Puerto Rico. In the center is Richie, who serves as the President of the board in Puerto Rico, and in the pink is his wife Ivette. They've been working very hard on HPS issues in Puerto Rico.
Comments