I talked to Debbie this evening. She's getting better - as she says, the elephant she's felt like has been sitting on her chest has gotten up and left. But, she still sounds short of breath on the phone and is still on high doses of steroids. She's going to be in the hospital a few more days. She says hello to everyone!!!
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
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