Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Here's some of our HPS crew marching in the New York Puerto Rican Day Parade back in June I think. Liz had sent me a pic, but it was very bit-mappish. She posted this one to the HPS Parents listserv and it was much better, so I thought you all would like to see it. Go New Yorkers!
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