Skip to main content

Did someone say sleep?

Okay, this fatigue thing is getting out of control. It’s been, shall we say, an HPSish female time lately, so I guess it’s no wonder I’m so tired. But, it seems like I’m always tired, no matter what the time of the month or the state of my health. I could just quite happily spend half my day in bed.

I start to wonder how much of that is physical and how much is psychological. To say I’ve been under a lot of stress lately would be the understatement of the century.

Yesterday I stayed home from work. I had acid reflux to beat the band all night and got pretty much no sleep. My gut just felt acidy and every time I’d lay down, here the stuff would come – yuck. I didn’t intend to miss a day of work. I got up and started to get ready for work, but felt like my body parts had cement in them. I decided to stay home and try to work. But, when I got up, fired up the computer and started trying to work, I kept getting dizzy spells.

It’s a bit hard to interview people and stare at the computer screen when you feel like that. I cancelled my interviews for the day and went back to bed. I don’t think this is making my employer, with our pending deadlines, very happy.

This afternoon I have another doctor’s appointment, but of course I feel much better today. I just slept for an entire day.
Labels:

Comments

Post a Comment

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for...
1 comment
Read more

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria...
Post a Comment
Read more

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.
Post a Comment
Read more