Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Tuesday, June 30, 2015
Hundred People Search Update
This past week we added three new HPSers to the patient registry. This leaves 88 to go on this year's Hundred People Search. The search for those affected by HPS is more important than ever. Not only is it vital that the bleeding disorder of HPS is accurately diagnosed, but now there is a therapy for the lungs as well. Keep up the outreach everyone.