Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Sunday, April 26, 2015
Hundred People Search Update
I have been so busy working on the move, that I haven't updated this for a bit. We have three new HPSers on the patient registry. So far this year, most of our new people are coming from outside the US - an interesting trend. This puts us at 91 to go for this year's Hundred People Search (H.P.S.).