Skip to main content

Move update: Trying very hard not to lose my mind

The move saga continues. Finding an apartment in Arlington has proven to be a huge job. It would be easier if I were moving like a normal person. The options would be wider. Instead, I’m trying to find an apartment in a very specific price range to qualify for a housing grant. I need something Ryan can get to if he needs to and it can’t have too many stairs (although some are okay.) And then there’s the laundry. I’m trying to get something with a laundry in the building somewhere. I think finding one with a unit in the apartment just isn’t going to happen in my price range.

I think I am going to have to go ahead and go to Arlington and put all my things in storage. This has been pretty upsetting for several reasons. First, it just adds more cost to the move. Second, it means Finley will have to go to my mom. If he doesn’t get shipped soon it will be too hot for it to be safe to ship him.

I have no doubt my mom will do a great job of caring for him, but I hate so much to be parted from him. And then there are all the hours we have spent on his helper dog training! Not using it for too long will set this process back. Plus, it adds the hassle of the whole thing.

Everything would be so much smoother if I could do this move door-to-door, but the thing is I need to get there. I’m very lucky I am doing as well as I am. This could last for years, or it could change on a dime. I’d feel so much better if I were there!

Not having this resolved just causes me so much stress! I’m trying not to be stressed, but easier said than done!



On the progress front, the Salvation Army came and got the couch, two desks and a chair I don’t plan to move. This leaves me with only one living room chair to sit on. I have the table chairs, but they aren’t exactly built for comfort. Finley and I are spending a lot of time sitting on the floor or in the bed! Grin!

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Help for one of our newest HPS friends

As many of you know, I have a google alert set up for all sorts of key terms like albinism, pulmonary fibrosis etc. The following was posted on the blog of a friend of Melanie's. Melanie is one of our newest members of the Hermansky-Pudlak Syndrome family. Unfortunately, like so many she didn't know she had HPS and the lung disease sort of snuck up on her. Melanie will be 26 years old next week. Perhaps some of us would like to contribute to the fund set up to help her and her family for her birthday. Here's the post: Melanie Hernandez, beloved sister and daughter to Pete, Monique, Cookie, and Bugie, has been diagnosed with Pulmonary Fibrosis, a lung disease occurring in people with Hermansky-Pudlak Syndrome, a very rare disease.Hermansky-Pudlak Syndrome (“HPS”) is a genetic metabolic disorder. It is characterized by: Albinism, Vision Impairment, Bleeding Disorder, Inflammatory Bowel Disease and Lung Disease – Pulmonary Fibrosis. With the family’s research and the recollect