Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Wednesday, December 10, 2014
Hundred People Search Update H.P.S.
Today we registered a new person to the HPS registry - this puts us at 86 to go on this year's Hundred People Search H.P.S. This is very much behind where we usually are, but we didn't do a trip to Puerto Rico this year either. We usually get around 40 on that trip. So, I'm not too worried about it. Our attention has very much been focused on some of the exciting things happening in research etc.