Just a quick update! Things are plugging right along here. I’ve had a lot of stomach upset the last two weeks, especially last week. Yesterday and today it was much better, so hopefully we are over that little speed bump. Besides that, there isn’t much to report. Yeah! Yep, that’s my goal – to have the most boring medical life possible!!! Grin!
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
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