Skip to main content

Blessed by my friends

A week ago today my neighborhood haunt, Homers, organized a benefit concert to help with the unexpected expenses surrounding trying to get a lung transplant. Words will never be able to express how grateful I am to them for taking on this project! They did an awesome job!

A number of different musicians played and some of the baristas that are artists donated art for a silent auction. They raised more than $1,800 to help with expenses. The generosity was overwhelming.

I am so blessed.

I am blesses to have so many great friends and people willing to pull out all the stops to help me.

The event was almost like a going away party. I saw friends from the neighborhood, friends from work and friends from Camp Fire where I volunteered years ago. It was such a great experience to see friends from so many different parts of my life all together.

The music and artwork were awesome.

Honestly, I felt like crying much of the evening but I managed not to do it. I was afraid that if I did, I’d lose it and I wouldn’t be able to stop crying.

There are a lot of things I am looking forward to about moving. I’ll be closer to my brother, sister-in-law and my three young nieces and nephews. I’ll get to share life with them more. Still, I am leaving behind so many friends here.

I suspect it will be very hard to make new friends in Virginia. I won’t have a job that puts me with people. At church you tend to bond with those with whom you have something in common. Being single and sick at 41 isn’t exactly something that fits well into a group.

Homers has been such a Godsend to me since I quit working full time. It is a place to go and work and get out of the same four walls. It was a place where the regulars almost became like co-workers.

Homers isn’t just a business that serves deserts and coffee – it’s a community. I will miss it so very much.

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for...

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria...

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.