I was looking something up on the NIH Website today and saw this video. In recent years NIH has been doing a lot more research on the vision of people with albinism in general. Many people with albinism that is not due to HPS or CHS have visited NIH in the past few years.. In past years with early research, many, many in the Hermansky-Pudlak Syndrome community were the first to lend their eyes to research. We were already going to the NIH for HPS research so it was an easy and convenient connection to make. We continue to be seen at the NIH Eye Clinic. I do have some thoughts about this research of a personal nature, but it's a busy day. They'll have to wait.
Here's the video: