Donna Appell, President and Founder of the HPS Network, recently spoke at a patient advocacy conference held by the Global Genes Project. Care givers come in lots of different forms. Sometimes its our family or friends caring for us. Sometimes, if you're an advocate, you find yourself caring for other HPSers or other friends.
This panel addressed the need for caretakers to take care of themselves. It is something that is SO HARD to do!
Here's a link to video from the conference session: http://vimeo.com/76072471