Ivette
Vasquez, President of the HPS Network Puerto Rico, was joined by 14 other
HPSers and family on the television program Entre Nosotras on WAPA TV 4 in San
Juan. The group spoke about Hermansky-Pudlak Syndrome and the Eighth Annual HPS
Puerto Rico Conference. A special hit with the interviewer was little Daneishka
m Gonzalez Rodriguez. She sat on the host’s lap for almost the entire interview
and was an awesome ambassador for HPS!
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life

Comments