Donna Appell, President and Founder of the Hermansky-Pudlak Syndrome Network, was awarded a fellowship to attend the 49th Annual Meeting of the Drug Information Association (DIA). The 2013 class of fellows included 19 representatives from patient advocate groups. They were chosen through a competitive application process. More than 75 patient advocates applied for read more: https://www.hpsnetwork.org/en/news/2013-06-25/drug-information-association-awards-fellowship-to-appell
I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.
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