Skip to main content

The Balance of Life


I have always had a problem with achieving balance in my life. I always, and have always, had more to do than I could ever get done. I can’t remember the last time I ever had the sense of having everything finished. Honestly, I’m not sure achieving that would be a good thing for me. 

Always feeling like there’s something left to do motivates me to get out of bed in the morning. It keeps me going when I feel blue. The trick is not getting overwhelmed. I haven’t quite mastered that trick yet! 

I have a family member that is forever asking me, “Don’t you get bored?” How could I possibly get bored! I get tired. I get so I don’t feel like doing anything more – but I don’t get bored. There are simply too many things I want to do! 

What a blessing! 

The balance, however, is the thing that makes me struggle. Since I was small, there has been this work ethic instilled in me. You don’t play until the work is finished. Yet, is the work ever finished? NO it is NOT! Grow up Heather! 

Right now I have a white board full of HPS news stories that need to be written. Each one, even if only a paragraph long, will require several phone calls and e-mails to get the necessary quotes, facts and photos. 

I’m almost caught up on phone calls. I think I only have about six to return right now. 

I’m worried because the HPS Network really needs to raise about $35,000 by July to maintain our current budget. That’s just to maintain. It doesn’t mean adding other things that we all want to add, like funding more research. 

The American Thoracic Society meeting is coming up and I’m trying to work on things that will leverage that expense to get the biggest bang for our buck. 

We want to launch a special newsletter for our big donors. I haven’t even had time to think about working on that. 

Then there are the daily things like the listservs, facebook and twitter. In this age, we’ve had to spend more time on this to keep our organization relevant. 

I could go on and on……..

And then there’s personal work that needs to be done. Even though I threw away a large trash bag of paper from my file cabinet just a few weeks ago, there’s more to do! The dust in my house seems unreasonable. The laundry needs to be done. I need to vacuum, go to the store etc. I have errands to run. 

What about the things I want to do – the things I enjoy? It seems as though I rarely get to these. (Thus the lack of blogging in recent years.) 

I feel like my writing skills are getting rusty. I have ideas for several children’s books I’d like to write and illustrate, but have never found the time to do. I have an idea for a series of short stories I’d like to write. I enjoy my knitting. I want to paint. I want to eat better and go to the gym. I want to learn to sing new songs. I have several books I want to read. 

Yet, as hard as it is for me to maintain a reasonable life balance, I’m just me – a single old maid! Grin! I so admire my friends with families and so many other responsibilities. If they can do it, why can’t I? 



Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Help for one of our newest HPS friends

As many of you know, I have a google alert set up for all sorts of key terms like albinism, pulmonary fibrosis etc. The following was posted on the blog of a friend of Melanie's. Melanie is one of our newest members of the Hermansky-Pudlak Syndrome family. Unfortunately, like so many she didn't know she had HPS and the lung disease sort of snuck up on her. Melanie will be 26 years old next week. Perhaps some of us would like to contribute to the fund set up to help her and her family for her birthday. Here's the post: Melanie Hernandez, beloved sister and daughter to Pete, Monique, Cookie, and Bugie, has been diagnosed with Pulmonary Fibrosis, a lung disease occurring in people with Hermansky-Pudlak Syndrome, a very rare disease.Hermansky-Pudlak Syndrome (“HPS”) is a genetic metabolic disorder. It is characterized by: Albinism, Vision Impairment, Bleeding Disorder, Inflammatory Bowel Disease and Lung Disease – Pulmonary Fibrosis. With the family’s research and the recollect