I want to give a shout out to the Rodriguez family. Despite being rained out last Saturday, they held a rummage sale for just three hours on Sunday and raised $240 for Hermansky-Pudlak Syndrome. If everyone on the registry just donated a dollar a week, we'd have $52,000 more a year for research. Can you imagine if just a fourth of those on the registry held a yard sale? We could make a lot of progress toward the cure with more small fundraisers like this. They DO make a difference.
I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.
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