Friday, July 20, 2012

CHS Family raises money for second annual CHS Conference


Heather Alvey, the mother of two with Chediak-Higashi Syndrome, held another fundraiser for the second annual Chediak-Higashi Syndrome Association Conference, to be held March 8 – 10, 2013 in Uniondale, NY. 


Alvery, and family and friends, sold various craft items at a table during “Friday After 5” a summer weekly event in Owensboro, KY. It’s something they’ve done several times during the summer to raise the money to attend the conference. 


The Second Annual Chediak-Higashi Syndrome Conference will once again be held in conjunction with the Hermansky-Pudlak Syndrome New York conference. 

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