HPS’ers show skin at dermatology conference

Mervin Hernandez and Ashley Appell showed off their skin at the 89th Annual Dermatologic Society of the Greater New York Conference in April. The conference was held at the Grand Hyatt Hotel in New York City.

Various hotel rooms contained patients, each modeling a different medical disorder affecting the skin. Mervin wore a medical gown and Ashley wore shorts and a t-shirt to expose their bruises for the crowd. Conference organizers said the Hermansky-Pudlak Syndrome patients were one of the most popular and well attended rooms.

Mervin took along his iPad and
showed the doctors photos of HPS platelets as well as medical information about the syndrome.

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Living on the frontlines

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