Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Monday, May 14, 2012
HPS2012 - Camp Donna (Long Island and Downtown) Adventures
Tommy got some awesome pics from our trip into the city after the conference. It means so much to spend time with HPS'ers. Now that I'm so involved with organizing the conference, it's really one of the only times I get to just hang out! A special thanks to Jackie Falco, who played tour guide for us. Now, that takes guts!