Florida Lions Clubs hear about HPS

Anthony Creer, husband of HPS’er Janet Perez, gave a presentation about Hermansky-Pudlak Syndrome to a district meeting of Latin American Lions Clubs from Orlando, Davenport, Kissimmee and Osceola, Florida. Creer is a member of the Osceola Lions Club that sponsored the meeting.


Creer shared information about HPS, about his wife Janet’s experiences as an HPS’er and lung transplant recipient, and about what the Network does to support those with HPS. The presentation yielded an invitation to speak to medical students in the future.