American Thoracic Society 2012

I'll post a full story about this later. I've been a bit under the weather since I got home. I thought it was allergies, but now, I think it's something more. I'm debating about whether to go to the doc or not. I know, I know, I should got, but now it's been days and I keep thinking surely we're coming to the end of this crud! It needs to get better quick though! I'm back out on the road very shortly!

In the meantime, let the picture parade begin! (You all know how I am about my camera!)

As you see from the video below, the girls got creative while we were waiting for the booth to open. The ATS Center was located across from our booth. One of the guys in the booth put on some sunglasses and started dancing as they were practicing, so we headed over to give him a performance! These pics are the girls singing to the ATS booth staff, and Donna dancing! I got off easy - I had the camera! The power of the camera!

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Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for...

Some good news about Pirfenidone

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The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Living on the frontlines

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