Wednesday, April 25, 2012

In memory of Sandra Quinones

The HPS Community has lost yet another treasured member to the Hermansky-Pudlak type of albinism - Sandra Quinones. Sandra lived in Puerto Rico, but relocated to Boston about a year ago to try to get a lung transplant. Sadly, the lung transplant didn’t happen. Sandra was finally listed, but only for a few days before she became too ill.

Sandra had an infectious personality. She was always smiling, always happy and always just bubbling with enthusiasm. She had a beautiful singing voice and a very strong faith in God. She was not only an advocate for HPS, but she was a proud wife and mother of a seven-year-old boy and a 13-year-old girl. Sandra was only just barely 39 years old. 

Sandra generously shared the details of her transplant experience in hopes that others could learn from her. She also generously allowed the NIH to take tissue from her body to help further research on HPS in hopes of one day finding better treatments, and even someday, a cure.
We will all owe her so much, and we will miss her greatly.
For anyone who wishes to attend a service for Sandra, or send her family a card, here’s the information:

In Massachusetts
Vowing at Iglesia de Dios Pentecostal
April 26, 2012 (Thursday)
675 Washington St.
Doorcheter MA
From 7:00 PM to 10:00 PM
For more Information please call Pastora Nancy Cuna at 617-869-8904

In Puerto Rico
Servicios funerarios :
Funeraria De Pedro
19 Alberto RichiePatillas, PR
Sabado 28 de Abril 2012 desde las 10:00 AM
El entierro es el Domingo en el Cementerio Municipal de Arroyo, la hora se anunciara luego
Para mas informacion , pueden llamar a la funerari al 787-839-3720 o 787-380-7347

Si desean enviar tarjetas a la familia/ If you wish to send a card to the family
Ricardo Garcia, Cristal y Lemuel Garcia
22 Emily Jeffer RD
Randolph, MA 02368

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