Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Saturday, April 14, 2012
Hundred People Search update
It's that time of year again. Time to kick off the Hundred People Search - HPS! This week we added one new HPS'er to the patient registry. We've got 99 to by next March! Grin! We don't want to leave anyone behind!