Tuesday, April 03, 2012

An awesome weekend for Hermansky-Pudlak Syndrome!

This past weekend was a particularly good one in the land of HPS. We had so many good things happening around the country.

Our New York City crowd (and Emilio from CT) attended the screening of RARE at the Brooklyn Girl Film Festival. They all wore our new t-shirts and I understand we sold some as well.

We were over the moon that RARE won first place in its category!!!! What an honor!

On top of that, while the folks in NYC were working on RARE, the folks in North Carolina were raising money. The Tillman crew had yet another successful Human Race! Way to go NC!!!!

And, if all that weren’t great – I got to be a proud University of Kansas alum and root for my team! Rock Chawk Jayhawk – Go KU! 

No comments: