Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Thursday, March 29, 2012
HPS Network Thursday night business meeting
We are very open about our meetings. We hold a business meeting at conference with the HPS Network board of directors, and anyone else who wants to come. These are usually members who are very involved in projects for the Network who have an interest in some of the business to be discussed. We have a good time. And, of course, it wouldn't be a Thursday night meeting without some dinner!