Yesterday another HPS’er got her angel wings. Shylia was so young. She was only in her early 20s. It’s unusual for someone with Hermansky-Pudlak Syndrome to develop the lung disease at such an early age, but it does happen. Shylia was unable to get a lung transplant, despite trying in both Florida and New York. She was such a beautiful girl. I only had the honor of meeting her once during the NOAH Adult Day a few years ago in Orlando. Please pray for her, and for her family. It is such a tragic loss.
In this photo Elsie is on the left, and Shylia is on the right. I tried to fix the red eye, but can't seem to get it completely out.